Chester Bennington Grave, Articles C

Dont see why HIIT should be excluded. Aortic dissection, a tear in the wall of the aorta. Biscuspid Aortic Valve with trivial AR This procedure has the particular benefit that no artificial valve (with the disadvantages described above) needs to be used. Seek different pediatric cardiologist/hospital (we have not seen a cardiologist yet)? Guidelines specifically for athletes come from the Proceedings of the 36th Bethesda Conference in 2005. In your experience, can patients with BAV go a lifetime without having AVR? It is unclear however if there are cardio thoracic surgeons who perform minimally evasive repairs yet. Aortic dilatation is a common feature of BAV with a prevalence ranging from 20 to 84% , due to differences in assessment techniques, study population, aortic size thresholds, and heterogeneous nature of the . It sounds like youve gotten conventional advice regarding sports where there is a risk of bodily injury. Replacement is much, much more common. Hamilton mother of twins, Cherie was diagnosed with bicuspid aortic valve disease (BAVD), a disease where the valve has only two leaflets. I have only played a few games of football in the last 5 years due to a knee injury but I have continued running for fun and do 5k in a reasonable 25 minutes. His only complaint or change is shortness of breath with stairs. Valve replacement with either a tissue (bioprosthetic) valve or a mechanical valve is, by far, more common. I am an having trouble seeing the difference in the ross procedure and the bioprospthetic valve replacement as far as benefits go? 1. 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Unfortunately his cardiologist took that from him so he focused his energy and talent on basketball. I had a scan done recently and they picked up a what they called a mild dilation of the aortic root at 47mm, ascending aorta 34mm, no other issues. I suspect (and hope) you will say that the latest recommendations say no restrictions for someone like me but I havent seen yoga specifically mentioned. The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. My son is 15 years old, he was born with BAV /aortic stenosis. At this appointment she advised that there has been some progression in his regurgitation and she did a stress test on him which did not show any concerns and hey was a ble to do it for almost 12 minutes. Here is a link to a diagram that categorizes sports according to their dynamic and static components: http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png. Problem is, Im getting older (52) now and Im wondering the effect age, and should I be asking for more frequent followups. Replacement of the aortic valve with either a cryopreserved human homograft (the aortic valve from a human cadaver) or with the patients own pulmonary valve results in the least obstruction to blood flow. Last echo measurements LDid 6.3cm z-score 2.4, LVIDs 4.1 cm z-score 2.0, LVPWd 1.2cm z-score 1.9, asc aorta Diam 4.0 cm z-score 5.8. It usually consists of three flaps of tissue what are called valve cusps. Down side: durabilitythe borrowed valve doesnt last forever; it will deteriorate and need re-replacement at some point. The pertinent questions for your cardiologist is whether there is any stenosis (narrowing) or regurgitation (leakage) of the aortic valve and whether the size (diameter) of the nearby aorta is normal. I am followed every 2 years. I have question about your opinion about aortic valve regurgitation (no BAV) Robin Williams - Aortic Valve Replacement & Mitral Valve Repair. When he was 7 we noticed his heart racing at age 11 his bicuspid aortic valve was diagnosed We have been told his valve is at the top of the normal size chart. It has a male predominance and often occurs in multiple members of the same family, suggesting that it may have an autosomal dominant inheritance, perhaps with variable penetrance. In March 2019, media outlets hailed two new studies on transcatheter aortic valve replacement (TAVR) as potentially signaling the beginning of the end of open heart surgery for aortic stenosis. Thank you very much for your thoughtful response. A bicuspid aortic valve (BAV) is an aortic valve that has only two leaflets instead of three. TAVR is a relTively new technology where a new heart valve, shrunk onto a catheter, can be threaded through the bloodstream (usually through a leg artery) to where your current valve sits.and then expanded inside the current valve, pushing it aside. (Yes, I have been going for regular check-up since in was about 7 years old. For these individuals, provided there is no other relevant heart disease, it may be appropriate to have follow-up echocardiogram and/or CT scanning every 2 years. What should i do? Some information about myself: Im 28, 186 cm, 77 kg, max pulse 194, rest 50 bpm, live in Russia. Yes, there are many athlete patients whove had operation for BAV/aortic replacement and returned to a variety of sports. Im used to long runs up to 12 miles at an average 6 minute per mile pace as well as fast interval and farther training. Activities are not usually restricted for athlete patients with mild aortic stenosis. If labeling my fitness level I wouldnt use the term athlete, but I used to work out pretty vigorously 5 days a week until about 8 months ago (weights, medium endurance cardio, no longer distance running than 5 miles, interspersed with HIIT). I cant lift over 40lbs and I cant continue my work as a tradesman as it requires lifting over the 40lb mark. 2. This blog helped me a lot in my panic days, it put me at ease when I was worrying to much, just to see and to know your enemy and to realize that you are not alone is great help. However, this is not always the case. And my doctor do not give me responsive and exact answer to my questions regarding sports. Thank you sincerely for your time and information. Thank you for your assistance in this matter. Susp. I have regular checks, 12 to 18 months, and until about 3 years ago was told that it was hard to tell that Id had a replacement valve, it now shows slight stiffening. One situation that seems particularly ripe for differences of opinion is that of the athlete with BAV, no significant stenosis or regurgitation, but with an aortic diameter of 4.5 to 5.0 cm. When we go back to re-replace a patients prosthetic valve, for some reason, it usually has to be chiseled out from the heart. I excercise 2-3 times a week, namely cardio and weight lifting. There is not much scientific evidence about what to expect. Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. I wonder if there is also a psychological factor involved. In fact, one young man died 5 years after operation (from other non related causes) and the study on his aorta tissue revealed that the device helped it to heal, presenting a healthy histology. I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. Im highly considering this option, after 4 months of research and appointments with doctors. Ordinarily, we reserve operation for patients with severe aortic regurgitation who have some decrement in the LV function. And, of course, aortic stenosis can affect ones native aortic valve or a prosthetic valve substitute. They all cause a small bit of obstruction to blood flow as it leaves the heart. First, a disclaimer.My practice is devoted to adult patients. Good to hear that youre doing well. All they said is dont really do weight where you can feel the strain in your neck ?!? For athletes who return to sport after AVR and aortic replacement, its important to settle on whats safe with your doctor(s) ahead of time. The doctor said she would see if she could talk about his case with the surgical panel but she said even if he did have surgery he couldnt have a career in sports??? Your doctor will be in the best position to know all of the relevant information and offer sound advice. Patients whove had aortic valve replacement and/or replacement of the aorta will require life-long monitoring by their doctor, with periodic echocardiogram and/or chest CT scanning. Without careful study, I dont know what the true risks will be. "I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Ive heard from a fair number of endurance athletes after having aortic valve operations of one sort or another. Measurements of aortic diameter can be made with echocardiogram. He left it pretty vague. My son will be 16 next month. Hey would like to continue to be active but is worried about which procedure would be best for him. I have: Thanks for sharing an update. The first pic showed the action and comedy legend in a supine position with a thumbs-up, while the next three featured a lovely autumn walk, taking in the sights. The congenital bicuspid aortic valve (BAV) condition is a valvulo-aortopathy with substantial heterogeneity in its clinical expressions, associated disorders, complications, and prognosis. . Moderately dilated aortic root (max 46mm), mild ascending aortic dilatation. My personal approach to endurance athletes in this situation would be to offer operation if the patient wanted to continue to participate in endurance sports (after operation) and was willing to assume the risks of operation. I would pose these questions to your doctor(s) since they are most familiar with the details of your situation. Thats always the concern with new techniques with limited follow-up data. The valve will become healed (scarred) into the surrounding heart tissues with the passage of time. What Is Bicuspid Aortic Valve Disease? It prevents the blood from flowing back from the aorta into the heart when the pumping chamber relaxes. 3 In the most common type (type 1), there is a fusion line between the left and right coronary cusps, which extends a variable distance from the commissure (the point of attachment of the . no tiredness, no dizziness, etc. I found a cardiologist with whom Im quite happy with. He was very talented at football. In fact, in some people they can go undiagnosed for years. 2. I did run 1-2 times/week for a 1.5 months now, the situation is getting a little better but still I feel like a 80 years old. To me, you know your own body and what you can manage whilst straining as little as possible. Sounds like youre on the right track by getting things evaluated. His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. In both echocardiographic cohorts and surgical series, pure aortic regurgitation is significantly less common than stenosis. The bicuspid aortic valve opens and closes abnormally, and can result in leaking of the valve. Thats an issue to pursue with your sons doctor(s). Hi Larry, Any guidelines? I have recently found out that I have aortic regurgitation will soon be needing surgery. Are we being foolish? After finding out about her heart disease, Braxton stopped eating unhealthy foods at night. For those same patients, we recommending avoiding strenuous dynamic exercise line swimming, running, soccer, tennis, cross-country skiing, etc. Most people require treatment once symptoms develop. Not sure I have something specific to suggest for additional reading.and I dont know where to steer you about a knowledgeable trainer in the UK. First, youre not alone! We expect the current generation tissue valve to last at least 12-15 years before problems. Cardiac outcomes in a contemporary population of adults with bicuspid aortic valve have not been systematically determined.Objective To determine the frequency and predictors of cardiac outcomes in a.